Will You Support John’s Campaign?

What Is John’s Campaign?

I want to tell you about a campaign; it’s a very special campaign; you may have heard of it; you may not; it’s called John’s Campaign. If you’ve heard of it you’ll know how important it is; if you haven’t heard of it, let me tell you why it’s important; it’s important because it deals with an issue that will touch the lives of many of us at some point: John’s Campaign is the campaign for the right to stay with people with dementia in hospital.

The campaign was named after Dr John Gerrard who died five weeks after entering hospital in November 2014. John was aged 86 when he died. He had been diagnosed with Alzheimer’s disease when he was in his mid-70s. He went into hospital to have treatment for leg ulcers. His family described his decline as catastrophic.

Going into hospital is unnerving and unsettling for most of us. For someone with dementia who is already confused, insecure and frightened the experience is something that we can only try to imagine. How can any society with any claims to being a compassionate one deny people with dementia the comfort of having a familiar figure with them when they are in hospital? One of the most important elements of support that people with dementia can be given is the reassurance that comes from having trusted people with them.

June Andrews, Professor of dementia studies at the University of Stirling puts things starkly: “…for many [people with dementia], getting admitted [to hospital] is the top of a slippery slope.” To find out what things might be encountered once on the slippery slope I recommend Andrews’ article to you. Further information is provided as follows by the Alzheimer’s Society:

• Over a quarter of hospital beds in the UK are currently occupied by people with dementia
• The average stay of a person with dementia is three weeks but it can be much longer if rehabilitation is a problem or there is nowhere suitable to go
• One third of people with dementia who go into hospital for an unrelated condition NEVER return to their own homes
• 47% of people with dementia who go into hospital are physically less well when they leave than when they went in
• 54% of people with dementia who go into hospital are mentally less well when they leave than when they went in

As things stand, there is no general right for carers, family or friends to stay with people with dementia when they are in hospital. Practice varies from hospital to hospital and from ward to ward. By supporting John’s Campaign you will be supporting the right to stay with people with dementia in hospital.

What Can You Do?

1.      Go to the website of John’s Campaign, in particular this page, which explains different things you can do.

2.      Download, read and disseminate widely the John’s Campaign Statement.

3.      This is an election year. You can question candidates about how they and their parties stand on the issue.

4.      Write to your local NHS trust and ask what its policy is.

5.      Go to the John’s Campaign Facebook page, like it and encourage all your friends to do the same.

It strikes us as almost unbelievable today that there was once a time - and it was a time in the not too distant past - that parents were not allowed to stay with their sick children in hospital. The generation who won the right for parents to stay with their children when they are in hospital is the generation who will benefit when John’s campaign succeeds.

If you have read this far, please support John’s Campaign.

Garry Costain is the Managing Director of Caremark Thanet, a domiciliary care provider with offices in Margate, Kent. Caremark Thanet provides home care services throughout the Isle of Thanet. Garry can be contacted on 01843 235910 or email garry.costain@caremark.co.uk. You can also visit Caremark Thanet's website at www.caremark.co.uk/thanet.